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57 resultsUpdated October 23, 2026
1

Thalassemia Major and Associated Psychosocial Problems: A Narrative Review

Iranian Journal of Public Health 51(1) (2022)

Hazel Şahin Tarım; Fatma Öz

2

An insight into Indonesian current thalassaemia care and challenges

ISBT Science Series 15(3) (2020)

Pustika Amalia Wahidiyat; Teny Tjitra Sari; Ludi Dhyani Rahmartani; Iswari Setianingsih; Stephen Diah Iskandar; Anastasia Michelle Pratanata; Ivana Yapiy; Mikhael Yosia; Fernando Tricta

3

Determinant factors of depression in beta major thalassemia children

Folia Medica Indonesiana 57(1) (2021)

Ahmad Suryawan; Hapsari Widya Ningtiar; Irwanto Irwanto; I Dewa Gede Ugrasena

4

Nursing Interventions to Improve Quality of Life Among Children and Adolescents with Thalassemia: A Scoping Review

Journal of Multidisciplinary Healthcare Volume 16 (2023)

Ai Mardhiyah; Santhna Letchmi Panduragan; ‎Henny Suzana Mediani; Iyus Yosep

5

Anxiety in children and adolescents with chronic physical health conditions: an updated meta-analysis

Journal of Pediatric Psychology 50(9) (2025)

Martin Pinquart; Alexander Thorwarth

6

Need for a universal thalassemia screening programme in India? A public health perspective

Journal of Family Medicine and Primary Care 8(5) (2019)

Sudip Bhattacharya; Arulmani Thiyagarajan; Neha Sharma; Abhay S. Srivastava; Dipak Kumar Dhar

7

Study of the Health Instructions Effect on Quality of Life and Psychological Problems among Children with Thalassemia

International Journal of Studies in Nursing (2016)

Seham Mohammed Elmwafie; Saida El Sayed Hassan El Azzab

8

Quality of Life of Pakistani Children with β-Thalassemia Major

Hemoglobin 42(5-6) (2018)

Humaira Yasmeen; Shahida Hasnain

9

Nurses' experiences of psychosocial care needs of children with thalassaemia and their families in Jordan: A phenomenological study

Nursing Open 9(6) (2021)

Ghada Mohammad Abu Shosha; Mahmoud Al‐Kalaldeh; Noordeen Shoqirat

10

An Epidemiological Study of the Quality of Life of Children With Beta-Thalassemia Major (β-TM) and Its Correlates in Kolkata, West Bengal, India

Cureus 15(3) (2023)

Bijit Biswas; Narendra Nath Naskar; Keya Basu; Aparajita Dasgupta; Rivu Basu; Bobby Paul

12

Quality of life in transfusion-dependent thalassemia patients

Journal of Taibah University Medical Sciences 12(5) (2017)

Rizq Allah Abdullah B Alzahrani; Oqab M. Almutairi; Mohammed S. Alghoraibi; Mshari S. Alabdulwahed; Muath K. Abaalkhail; Mashel khalid Alhawish; Mazi T. Alosaimy

13

Endocrinal Complications in Children and Adolescents with Thalassemia Major in Central India: An Observational Study

The Indian Journal of Pediatrics 89(10) (2021)

Nandini Dixit; Chandan Kumar Shaw; Garima Agrawal Varshney; Ravindra Kumar; Purti Agrawal Saini; Pramila Verma

14

Psychological morbidity among children with transfusion dependent β-thalassaemia and their parents in Sri Lanka

PLoS ONE 15(2) (2020)

Sachith Mettananda; Ravindu Peiris; Hashan Pathiraja; Miyuru Chandradasa; D. C. Bandara; Udaya de Silva; Chamila D. Mettananda; Anuja Premawardhena

15

Construction of an exposure-pathway-phenotype in children with depression due to transfusion-dependent thalassemia: Results of (un)supervised machine learning.

Journal of Affective Disorders 282 (2020)

Hussein Kadhem Al‐Hakeim; Asawer Hassan Najm; Shatha Rouf Moustafa; Michael H. J. Maes

16

Depression, Anxiety, and Stress Symptoms in Patients With Beta Thalassemia Major in Almadinah Almunawwarah, Saudi Arabia

Cureus 12(11) (2020)

Mohammed Adnan Zolaly; Farah M Zolaly; Lama Al Belowi; Raafat Mahmoud Shuqdar; Mohammed A Al Belowi; Turki Alwasaidi; Muayad Saud Albadrani

17

The Effect of a Training Program Based on the PRECEDE-PROCEED Model on Lifestyle of Adolescents with Beta-Thalassemia: A Randomized Controlled Clinical Trial

International Journal of Hematology-Oncology and Stem Cell Research 13(1) (2019)

Malihe Bazpour; Mahin Gheibizadeh; Amal Saki Malehi; Bijan Keikhaei

18

The transactional model of stress and coping as guidance for understanding adolescent patients' experience with thalassemia: Case report

Journal of Child and Adolescent Psychiatric Nursing 33(1) (2019)

Ghada Mohammad Abu Shosha; Mahmoud Al‐Kalaldeh

19

Coping Behaviors in Parents of Children with Thalassemia major

Medical - Surgical Nursing Journal In Press(In Press) (2017)

Fatihe Kermansaravi; Fereshteh Najafi; Somaye Rigi

20

Patient-reported Outcome Measures in Pediatric Non-Malignant Hematology: A Systematic Review

Journal of Pediatric Hematology/Oncology 43(4) (2020)

Julia Y. Kinahan; Johann Graham; Yamilée V. Hébert; Margaret Sampson; Katie O’Hearn; Robert J. Klaassen

21

Thalassemia patients in transfussion dependent period and after hematopoietic stem cell transplantation: how are the psychiatric status and life quality of these patients?

Pediatric Hematology and Oncology 40(7) (2023)

Merve Çıkılı Uytun; Mehtap Eroğlu; Mehmet Ertem; Talia İleri; Elif İnce; Birim Günay Kılıç

22

The Depression Categories of Adolescent with Beta-Thalassemia Major

Majalah Keperawatan Unpad/Journal of Nursing Care 2(1) (2019)

Wafa Fida Az-zahra; Ai Mardhiyah; Ikeu Nurhidayah

23

Factors contributing to anxiety in adolescents surviving thalassemia major in Indonesia

BMC Pediatrics 25(1) (2025)

‎Henny Suzana Mediani; Novitasari Tsamrotul Fuadah

24

Nursing interventions for improving quality of life among parents with major Thalassemic children: a scoping review

BMC Nursing 24(1) (2025)

Ai Mardhiyah; Iyus Yosep; Sri Hendrawati; Windy Rakhmawati; Khoirunnisa Khoirunnisa; Theresia Eriyani; Rohman Hikmat

25

An investigation on the frequency of thoughts, readiness and suicide attempt in individuals with thalassemia

Pakistan Journal of Medical and Health Sciences 15(6) (2021)

Sahar Attar; Nour‐Mohammad Bakhshani; Qasem Miri Aliabad

26

Psychological Burden among Pediatric Thalassemia Major Patients in Indonesia: A Review

Thalassemia Reports 14(2) (2024)

Teny Tjitra Sari; Ludi Dhyani Rahmartani; Angga Wirahmadi; Nathasha Brigitta Selene; Stephen Diah Iskandar; Pustika Amalia Wahidiyat

27

Psychosocial aspects in children with transfusion-dependent thalassemia

Vulnerable Children and Youth Studies 19(1) (2023)

Diah Kusuma Arumsari; Andi Cahyadi; Mia Ratwita Andarsini; Ferry Efendi; Adwina Nurlita Kusuma Wardhani; Maria Christina Shanty Larasati; I Dewa Gede Ugrasena

28

Distinct patterns of health risk behaviours in adolescents with thalassaemia

Annals of Medicine 57(1) (2025)

Pattaporn Kaewkong; Nonglak Boonchooduang; Narueporn Likhitweerawong; Pimlak Charoenkwan; Orawan Louthrenoo

29

Acceptance and Commitment Therapy Improves Psychological Flexibility of Students with Thalassemia Major: A Randomized Controlled Trial

Practice in Clinical Psychology (2019)

Homeira Mahmoudi Souran; Gholam Reza Sanagouyemoharer; Mahmoud Shirazi

30

Theorizing Beta Thalassemia Major: an Overview of Health Sociology

International and Multidisciplinary Journal of Social Sciences 9(1) (2020)

Muhammad Abo ul Hassan Rashid; Saif–ur-Rehman Saif Abbasi

31

Pelatihan Public speaking Sebagai Sarana Peningkatan Kepercayaan Diri dan Kompetensi Komunikasi Pada Remaja Dengan Thalassemia (Thaller) di Kota Depok.

Prosiding Seminar Nasional Pemberdayaan Masyarakat (SENDAMAS) 2(1) (2022)

Cut Meutia Karolina; Ruvira Arindita

32

Evaluation of Self-efficacy in Children and Adolescents With Thalassemia Major

Journal of Pediatric Hematology/Oncology 43(6) (2021)

Adel Baghersalimi; Bahram Darbandi; Ehsan Kazem‌nezhad Leyli; Zahra Kamran Mavardiani; Monireh Ahmad Sharbafi; Azar Rezasefat

33

Psychosocial Problems on Adolescents with Thalassemia Major: A Systematic Scoping Review

KnE Social Sciences (2023)

Ai Mardhiyah; ‎Henny Suzana Mediani; Santhna Letchmi Panduragan; Iyus Yosep

34

Gambaran Tingkat Kecemasan dan Depresi pada Pasien Anak dengan Thalasemia Mayor di RSUD Al Ihsan Bandung Tahun 2021-2022

Bandung Conference Series Medical Science 3(1) (2023)

Wafa Haifa Nur Maula; Agung Firmansyah Sumantri; Harvi Puspa Wardani

35

Compliance of Children with Thalassemia to Their Therapeutic Regimen

International Egyptian Journal of Nursing Sciences and Research 2(2) (2022)

Shimaa F. Elsoudy; Nadia Madinay; Ebtsam Salah Yonis Mahrous

36

Well-being, familial risk, and transfusion interval in thalassemia-affected families: A two-step cluster analysis

Journal of Education and Health Promotion 8(1) (2019)

Arulmani Thiyagarajan; M Bhagvandas; Kalpana B. Kosalram; Sudip Bhattacharya

37

Factors affecting health-related quality of life and its association with the Xmn1-Gγ polymorphism among adolescents with transfusion-dependent beta thalassemia and HbE/β-thalassemia in East Coast Malaysia

Pediatric Hematology Oncology Journal 5(2) (2020)

Wardah Yusof; Maryam Mohd Zulkifli; Nurul Fatihah Azman; Ab Hamid Siti‐Azrin; Azizah Othman; Nani Draman; Bin Alwi Zilfalil; Rosline Hassan; Wan Zaidah Abdullah

38

Gambaran Masalah Psikososial pada Remaja dengan Thalassemia Mayor dan Diabetes Mellitus Tipe-1

Sari Pediatri 22(2) (2020)

Bernie Endyarni Medise; Naela Fadhila; Tjhin Wiguna; Zakiudin Munasir; Jose R. L. Batubara; Pustika Amalia Wahidiyat; Haryanti Fauzia Wulandari; Rosalina Dewi Roeslani

39

Hope Among Adolescents With Thalassemia in Indonesia: A Cross-Sectional Study

KnE Life Sciences (2022)

Ai Mardhiyah; ‎Henny Suzana Mediani; Santhna Letchmi Panduragan; Iyus Yosep

40

VOL. 9, NUM. 1 - FULL ISSUE

International and Multidisciplinary Journal of Social Sciences 9(1) (2020)

Tinka Tabea Schubert

41

Vol. 7, Num. 1 - Full Issue

Hipatia Press (University of Barcelona) (2018)

Tinka Tabea Schubert

42

VOL. 7, NUM. 3 - FULL ISSUE

Hipatia Press (University of Barcelona) (2018)

Tinka Tabea Schubert

43

VOL. 7, NUM. 2 - FULL ISSUE

Hipatia Press (University of Barcelona) (2018)

Tinka Tabea Schubert

44

VOL. 8, NUM. 1 - FULL ISSUE

Hipatia Press (University of Barcelona) (2019)

Tinka Tabea Schubert

45

HEALTH RELATED QUALITY OF LIFE OF CHILDREN WITH THALA SSEMIAAT TERTIARY CARE HOSPITAL IN BELAGAVI.- A CROSS SECTIONAL STUDY

INTERNATIONAL JOURNAL OF SCIENTIFIC RESEARCH (2020)

Arer AR; MahalingMallikarjun Hulagbali

46

Psychische Gesundheit bei chronischen Erkrankungen am Beispiel der Hämophilie

Paediatrica 32(2) (2021)

Martina De Gaudenzi; Johanna A. Kremer Hovinga; Jochen Karl Rössler; Michael Kaess; Mutlu Kartal‐Kaess

47

Santé psychique lors de maladies chroniques à l’exemple de l’hémophilie

Paediatrica Métabolisme/maladies rares 32(2) (2021)

Martina De Gaudenzi; Johanna A. Kremer Hovinga; Jochen Karl Rössler; Michael Kaess; Mutlu Kartal‐Kaess

48

VOL. 8, NUM. 3 - FULL ISSUE

Hipatia Press (University of Barcelona) 8(3) (2019)

Tinka Tabea Schubert

49

Vol. 6, Num. 3 - Full Issue

Hipatia Press (University of Barcelona) (2017)

Tinka Tabea Schubert

50

Psychological Aspects and Coping Strategies Among Children of Baal Sudhar Griha, Morang

Journal of Biratnagar Nursing Campus 1(1) (2023)

Shalini Mehta; Basant Kumar Karn; Ramananda Chaudhary; Sami Lama

51

Parental barriers in preventing recurrent thalassemia in children: A qualitative study

Jurnal Aisyah Jurnal Ilmu Kesehatan 9(1) (2024)

Ai Mardhiyah; Iyus Yosep; Windy Rakhmawati; Siti Yuyun Rahayu Fitri; Iwan Shalahuddin

52

Prevalence of Depression in Patients with Thalassemia Major and Thalassemia Intermedia in Jahrom County

Taḥqīq va tusi̒ah-i salāmata 1(1) (2023)

Sara Matin; Mohsen Ghiasi; Navid Kalani; Ehsan Rahmanian

53

Psychiatric morbidity and cognitive ability in children with β-thalassemia: A hospital-based cross-sectional study

Archives of Mental Health 26(1) (2025)

Pradeep Kumar; Shivananda Manohar; Anu Janardhan; Rajesh Raman

54

Psychological Burden and Suicidal Vulnerability in Adolescents with Thalassemia Major: A Scoping Review

Journal of Multidisciplinary Healthcare Volume 19 (2026)

Ai Mardhiyah; Iyus Yosep; Tuti Pahria; Ahmad Yamin