Logo

Causes of family refusal for organ donation in brain-dead cases, A Narrative Review

Author(s):
Keihan MostafaviKeihan Mostafavi, Mojtaba Mokhber DezfoliMojtaba Mokhber Dezfoli, Negin JarrahNegin Jarrah, Sadra MontazeriSadra Montazeri, Seyed Khashayar MirbahaeddinSeyed Khashayar Mirbahaeddin, Mahdieh HazratiMahdieh Hazrati, Yazdan AbdolmohammadiYazdan Abdolmohammadi, Seyyed Javad  NajafizadehSeyyed Javad Najafizadeh,*

Koomesh:Vol. 25, issue 1; 113-118
Published online:Mar 06, 2023
Article type:Review Article
Received:Jan 01, 2022
Accepted:Sep 06, 2022
How to Cite:Keihan MostafaviMojtaba Mokhber DezfoliNegin JarrahSadra MontazeriSeyed Khashayar MirbahaeddinMahdieh HazratiYazdan AbdolmohammadiSeyyed Javad Najafizadehet al.Causes of family refusal for organ donation in brain-dead cases, A Narrative Review.koomesh.25(1):e152808.

Abstract

References

  • 1.
    Cardoso LM, Moreira LF, Pinto MA, Henriques-Pons A, Alves LA. Domino hepatocyte transplantation: a therapeutic alternative for the treatment of acute liver failure. Can J Gastroenterol Hepatol 2018; 2018.
  • 2.
    Yaron JR, Kwiecien JM, Zhang L, Ambadapadi S, Wakefield DN, Clapp WL, et al. Modifying the organ matrix pre-engraftment: A new transplant paradigm? Trends Mol Med 2019; 25: 626-639.
  • 3.
    Hashemian SM, Delavarkasmaei H, Najafizadeh K, Mojtabae M, Ardehali SH, Kamranmanesh MR, et al. Role of transcranial doppler sonography in diagnosis of brain death: a single center study. Tanaffos 2016; 15: 213.
  • 4.
    Tollefsen C. Family consent and organ donation. J Med Philos 2019; 44: 588-602.
  • 5.
    Vishteh HR, Ghorbani F, Ghobadi O, Shafaghi S, Barbati ME, Louyeh AR, Najafizadeh K. Causes and follow-up outcomes of brain dead patients in Shahid Beheshti University of Medical Sciences hospitals. Pajoohandeh J 2010; 15: 171-178.
  • 6.
    Horvat LD, Cuerden MS, Kim SJ, Koval JJ, Young A, Garg AX. Informing the debate: rates of kidney transplantation in nations with presumed consent. Ann Intern Med 2010; 153: 641-649.
  • 7.
    Shahgheragh SM, Ebrahimian A, Fakhr MA. Death risk classifying in patients with internal medical emergencies in pre-hospital settings. Koomesh 2021; 23: 456-464. (Persian).##https://doi.org/10.52547/koomesh.23.4.456.
  • 8.
    Rosenblum AM, Horvat LD, Siminoff LA, Prakash V, Beitel J, Garg AX. The authority of next-of-kin in explicit and presumed consent systems for deceased organ donation: an analysis of 54 nations. Nephrol Dial Transplant 2012; 27: 2533-2546.
  • 9.
    Barber K, Falvey S, Hamilton C, Collett D, Rudge C. Potential for organ donation in the United Kingdom: audit of intensive care records. BMJ 2006; 332: 1124-1127.
  • 10.
    Sheehy E, Conrad SL, Brigham LE, Luskin R, Weber P, Eakin M, et al. Estimating the number of potential organ donors in the United States. N Engl J Med 2003; 349: 667-674.
  • 11.
    Mojtabaee M, Ghorbani F, Mohsenzadeh M, Beigee FS. Update on causes of family refusal for organ donation and the related factors: reporting the changes over 6 years. Transplant Proc 2018; 50: 10-13, 2018.
  • 12.
    Lopp L. Regulations regarding living organ donation in Europe. Possibilities Harmon 2013.
  • 13.
    Glazier AK. The principles of gift law and the regulation of organ donation. Transpl Int 2011; 24: 368-372.
  • 14.
    http://www.ehda.ir/Shahryari S./November 2021 29.
  • 15.
    Pelletier M. The organ donor family members' perception of stressful situations during the organ donation experience. J Adv Nurs 1992; 17: 90-97.
  • 16.
    Sque M, Long T, Payne S, Allardyce D. Why relatives do not donate organs for transplants: 'sacrifice' or 'gift of life'? J Adv Nurs 2008; 61: 134-144.
  • 17.
    Martnez JM, Lopez JS, Martn A, Martn MJ, Scandroglio B, Martn JM. Organ donation and family decision-making within the Spanish donation system. Soc Sci Med 2001; 53: 405-421.
  • 18.
    Sque M, Long T, Payne S. Organ donation: key factors influencing families' decision-making. Transplant Proc 2005; 37: 543-546.
  • 19.
    Rodrigue JR, Cornell DL, Howard RJ. The instability of organ donation decisions by next-of-kin and factors that predict it. Am J Transplant 2008; 8: 2661-2667.
  • 20.
    Merchant SJ, Yoshida EM, Lee TK, Richardson P, Karlsbjerg KM, Cheung E. Exploring the psychological effects of deceased organ donation on the families of the organ donors. Clin Transplant 2008; 22: 341-347.
  • 21.
    Siminoff LA, Gordon N, Hewlett J, Arnold RM. Factors influencing families' consent for donation of solid organs for transplantation. JAMA 2001; 286: 71-77.
  • 22.
    Simpkin AL, Robertson LC, Barber VS, Young JD. Modifiable factors influencing relatives' decision to offer organ donation: systematic review. Bmj 2009; 338.
  • 23.
    de Groot J, Vernooij-Dassen M, Hoedemaekers C, Hoitsma A, Smeets W, van Leeuwen E. Decision making by relatives about brain death organ donation: an integrative review. Transplantation 2012; 93: 1196-1211.
  • 24.
    Radecki CM, Jaccard J. Psychological aspects of organ donation: a critical review and synthesis of individual and next-of-kin donation decisions. Heal Psychol 1997; 16: 183-195.
  • 25.
    Long T, Sque M, Addington-Hall J. What does a diagnosis of brain death mean to family members approached about organ donation? A review of the literature. Prog Transplant 2008; 18: 118-125.
  • 26.
    Ghorbani F, Khoddami-Vishteh HR, Ghobadi O, Shafaghi S, Louyeh AR, Najafizadeh K. Causes of family refusal for organ donation. Transplant Proc 2011; 43: 405-406.
  • 27.
    Bahrami A, Khaleghi E, Vakilzadeh AK, Afzalaghaee M. Process and barriers to organ donation and causes of brain death in northeast of Iran. Electron Physician 2017; 9: 3797-3802.
  • 28.
    Pessoa SF, Barroso VS, Duarte AV, Abreu HC, Castro BB, Carminatti M, Sanders-Pinheiro H. Public knowledge and attitudes toward organ donation and transplantation: a survey from a medium-sized brazilian city. Transplant Proc 2020; 52: 1223-1225.
  • 29.
    Akkas M, Demir MC. Barriers to brain death notifications from emergency departments. Transplant Proc 2019; 51: 2171-2175.
  • 30.
    Martnez JS, Lpez MJ, Scandroglio B, Garca JM. Family perception of the process of organ donation. Qualitative psychosocial analysis of the subjective interpretation of donor and nondonor families. Span J Psychol 2008; 11: 125-136.
  • 31.
    Sotodeh Asl N, Avazabadian M, Ghorbani R, Malek F. Quality of life in patients with hypertension and type 2 diabetes mellitus. Koomesh 2020; 22: 263-268. (Persian).##https://doi.org/10.29252/koomesh.22.2.263.
  • 32.
    Moraes EL, Massarollo MC. Family refusal to donate organs and tissue for transplantation. Revista latino-americana de enfermagem 2008;16: 458-464.
  • 33.
    Shih FJ, Lai MK, Lin MH, Lin HY, Tsao CI, Chou LL, Chu SH. Impact of cadaveric organ donation on Taiwanese donor families during the first 6 months after donation. Psychosom Med 2001; 63: 69-78.
  • 34.
    Siminoff LA, Lawrence RH, Arnold RM. Comparison of black and white families' experiences and perceptions regarding organ donation requests. Crit Care Med 2003; 31: 146-151.
  • 35.
    Dodd-McCue D, Tartaglia A, Cowherd R. The role of women in the donation consent decision: building on previous research. Prog Transplant 2007; 17: 209-214.
  • 36.
    Doering JJ. Families' experiences in consenting to eye donation of a recently deceased relative. Heart Lung 1996; 25: 72-78.
  • 37.
    Tadini-Buoninsegni L, Guetti C, Bonizzoli M. Factors influencing consent to organ donation after brain death certification: a survey of 29 Intensive Care Units. Minerva Anestesiol 2018; 84: 1044-1052.
  • 38.
    Viuela-Prieto JM, Falcn MC, Candel FJ, Rodrguez AM, Gonzlez JI, del Ro Gallegos F. Family refusal to consent donation: retrospective quantitative analysis of its increasing tendency and the associated factors over the last decade at a spanish hospital. Transplant Proc 2021; 53: 2112-2121.
  • 39.
    Lpez JS, Soria-Oliver M, Aramayona B, Garca-Snchez R, Martnez JM, Martn MJ. An integrated psychosocial model of relatives' decision about deceased organ donation (IMROD): joining pieces of the puzzle. Front Psychol 2018; 9: 408.
  • 40.
    Shih FJ, Lai MK, Lin MH, Lin HY, Tsao CI, Duh BR, Chu SH. The dilemma of 'to-be or not-to-be': needs and expectations of the Taiwanese cadaveric organ donor families during the pre-donation transition. Soc Sci Med 2001; 53: 693-706.
comments

Leave a comment here

Share on
Metrics

Purchasing Reprints

  • Copyright Clearance Center (CCC) handles bulk orders for article reprints for Brieflands. To place an order for reprints, please click here (   https://www.copyright.com/landing/reprintsinquiryform/ ). Clicking this link will bring you to a CCC request form where you can provide the details of your order. Once complete, please click the ‘Submit Request’ button and CCC’s Reprints Services team will generate a quote for your review.
Search Relations

Author(s):

Related Articles