Quality of life and its related factors in Iranian mothers’ with a mentally retarded child

authors:

avatar Zahra Ahmadizadeh , avatar Farideh Kamran , avatar Fatemeh Kasbi , avatar Reihaneh Nourouzi , avatar Maryam Mokhlesin , *

Koomesh: Vol.20, issue 4; 719-724
published online: March 02, 2018
article type: issue_documents_importer
received: October 01, 2017
accepted: February 02, 2018

how to cite: Ahmadizadeh Z, Kamran F, Kasbi F, Nourouzi R, Mokhlesin M. Quality of life and its related factors in Iranian mothers’ with a mentally retarded child. koomesh. 2018;20(4):e153017. 

Abstract

Introduction: In addition to the child, disability also affects the family, especially the mothers. Since attention to maternal health is influential on family and community health and the level of satisfaction and quality of life of people is influenced by society and culture, this study evaluated the quality of life of mothers with a mentally retarded child and its related variables in the city Semnan (Iran). Materials and Methods: This is a cross-sectional study. Census method was used to study mothers of intellectual disability children and 43 of them participated. Control group included 43 of mothers with normal children too. A demographic form and World health organization summery test of quality of life (WHOQOL-BREF) were used for data collection. Total score and each subtest were compared between the groups and correlations between scores and demographic data were studied. Results: Total score of the test and also psychological and environmental subtest scores were significantly lower in the study group. Among studied variables (age, sex, communication and appearance of children, number of children and family`s income also mother`s education and outside working), just mother`s education and family’s income had a significant weak negative correlation with quality of life (z=-0.3). Conclusion: Mothers of mental retarded children were less satisfied. There was a negative correlation between such dissatisfaction and mother`s educational level and family income which can be due to more expectations of such mothers from the child. So mothers of mental retarded children especially with more education need supports and consultations to improve their quality of life

References

  • 1.

    Daily DK, Ardinger HH, Holmes GE. Identification and evaluation of mental retardation. Am fam phys 2000; 61: 1059.

  • 2.

    Luckasson R, Borthwick-Duffy S, Buntinx WH, Coulter DL, Craig EMP, Reeve A, et al. Mental retardation: Definition, classification, and systems of supports: American Association on Mental Retardation. 10th ed. ERIC press; 2002. p. 38##.

  • 3.

    Gau SS, Chiu YN, Soong WT, Lee MB. Parental characteristics, parenting style, and behavioral problems among Chinese children with Down syndrome, their siblings and controls in Taiwan. J Formos Med Assoc 2008; 107: 693-703.

  • 4.

    Sen E, Yurtsever S. Difficulties experienced by families with disabled children. J Spec Pediatr Nurs 2007; 12: 238-252.

  • 5.

    Prutkin JM. A History of Quality of life Measurment. Thes Submit Yale Med Univ 2002; 1-25.

  • 6.

    McConkey R, Truesdale-Kennedy M, Chang MY, Jarrah S, Shukri R. The impact on mothers of bringing up a child with intellectual disabilities: A cross-cultural study. Int J Nurs Stud 2008; 45: 65-74.

  • 7.

    Ahmadizadeh Z, Mokhlesin M. Factors which affect the depression of mothers with cerebral palsy child. Iran Rehab J 2014; 12. (Persian).

  • 8.

    Raina P, O'Donnell M, Schwellnus H, Rosenbaum P, King G, Brehaut J, et al. Caregiving process and caregiver burden: conceptual models to guide research and practice. BMC Pediatr 2004; 4: 1.

  • 9.

    khayatzadeh-mahani M. comparing quality of life among mothers with cerebral palsy, mental retadation and healthy kids. Daneshvar 2009; 11: 1-11. (Persian).

  • 10.

    Taghizadeh H, Asadi R. Comparative analysis of quality of life in mothers of children with mental disability and mothers of normal children. MEJDS 2014; 4: 66-74. (Persian).

  • 11.

    Kiani F, Poodineh Z. The comparative survey of life quality between mothers of mentally retarded, cerebral palsy and healthy children. Zahedan J Res Med Sci 2011; 13: 15. (Persian).

  • 12.

    Abbasian-Nik Z, Hashemi V. Quality of life differences among mothers with blind, mental retarded and normal children. Proceeding of 6th International Congress on Child and Adolescent Psychiatry; 2013 Sep 17-19; Tabriz. Iran. Tabriz University of medical sciences congress portal; 2013. (poster).

  • 13.

    Abbasi S, Sajedi F, Hemmati S, Najafi Fard T, Azadchehr MJ, Poursadoghi A. Evaluation of quality of life in mothers of children with down syndrome. Pract Clin Psychol 2016; 4: 81-88. (Persian).

  • 14.

    Rudolph M, Kummer P, Eysholdt U, Rosanowski F. Quality of life in mothers of speech impaired children. Logoped Phoniatr Vocol 2005; 30: 3-38.

  • 15.

    Saghafi F, Heshmati Z, Khaledian M, Dadashkarimi H. The effects of cochlear implant on parental mental health. Tech J Eng Appl Sci 2013; 3: 1855-1861. (Persian).

  • 16.

    Aras I, Stevanovi R, Vlahovi S, Stevanovi S, Kolari B, Kondi L. Health related quality of life in parents of children with speech and hearing impairment. Int J Pediatr Otorhinolaryngol 2014; 78: 323-329.

  • 17.

    Nedjat S, Montazeri A, Holakouie K, Mohammad K, Majdzadeh R. Psychometric properties of the Iranian interview-administered version of the world health organization's quality of life questionnaire (WHOQOL-BREF): a population-based study. BMC Health Serv Res 2008; 8: 61.

  • 18.

    Hedov G, Annern G, Wikblad K. Self-perceived health in Swedish parents of children with Down's syndrome. Qual Life Res 2000; 9: 415-422.

  • 19.

    Geok CK, Abdullah KL, Kee LH. Quality of life among Malaysian mothers with a child with Down syndrome. Int J Nurs Pract 2013; 19: 381-389.

  • 20.

    Haldy MB, Hanzlik JR. A comparison of perceived competence in child-rearing between mothers of children with Down syndrome and mothers of children without delays. Educ Train Mental Retard 1990; 132-141.

  • 21.

    Sales E. Family burden and quality of life. Qual Life Res 2003; 12: 33-41.

  • 22.

    Ahmadizadeh Z, Rassafiani M, Khalili MA, Mirmohammadkhani M. Factors associated with quality of life in mothers of children with cerebral palsy in Iran. Hong Kong J Occup Ther 2015; 25: 15-22.

  • 23.

    Yazdi-Ravandi S, Taslimi Z, Haghparast A, Ghaleiha A. Quality of life in patients with chronic pain disorders: Determinnation the role of intensity and duration of pain. Koomesh 2015; 17: 836-843. (Persian).

  • 24.

    Huttunen K, Rimmanen S, Vikman S, Virokannas N, Sorri M, Archbold S, Lutman M. Parents views on the quality of life of their children 23 years after cochlear implantation. Int J Pediatr Otorhinolaryngol 2009; 73: 1786-1794.

  • 25.

    Shin J, Nhan N, Crittenden K, Hong H, Flory M, Ladinsky J. Parenting stress of mothers and fathers of young children with cognitive delays in Vietnam. J Intellect Disabil Res 2006; 50: 748-760.

  • 26.

    Sloper P, Knussen C, Turner S, Cunningham C. Factors related to stress and satisfaction with life in families of children with Down's syndrome. J Child Psychol Psychiatry 1991; 32: 655-676.

  • 27.

    Olsson M, Hwang C. Socioeconomic and psychological variables as risk and protective factors for parental well being in families of children with intellectual disabilities. J Intellect Disabil Res 2008; 52: 1102-1113.

  • 28.

    Hatton C, Emerson E. Does socioeconomic position moderate the impact of child behaviour problems on maternal health in South Asian families with a child with intellectual disabilities? J Intellect Dev Disabil 2009; 34: 10-16.

  • 29.

    Ong L, Afifah I, Sofiah A, Lye M. Parenting stress among mothers of Malaysian children with cerebral palsy: predictors of child-and parent-related stress. Ann Trop Paediatr 1998; 18: 301.

  • 30.

    Ong L, Chandran V, Peng R. Stress experienced by mothers of Malaysian children with mental retardation. J Paediatr Child Health 1999; 35: 358-362.

  • 31.

    Jadidi J, Janbozorgi M, Rasoulzadeh-Tabatabaei S. Comparing effective factors on power distribution in families women work and in families they do not. J Ravanshenasi va din 2009; 1: 1-9. (Persian).

  • 32.

    Uzun , Aslan FE, Selimen D, Ko M. Quality of life in women with breast cancer in Turkey. J Nurs Scholarsh 2004; 36: 207-213.

  • 33.

    Beck A, Daley D, Hastings RP, Stevenson J. Mothers expressed emotion towards children with and without intellectual disabilities. J Intell Disabil Res 2004; 48: 628-638.

  • 34.

    Malekpour M, Faraahani H, Aghaei A, Bahrami A. The effect of life-skills training on mothers stress having mentally retarded and normal children. Res Except Child 2006; 6: 661-676. (Persian).

  • 35.

    Ilali E, Esmaeili R. Analysis of stress factors and adjustmental mechanisms towards these factors in parents of mentally retarded children in their special school in Sari in 1997. Mazandaran Univ Med Sci 2001; 10: 35-40. (Persian).##.