Children with disabilities require extensive medical, educational, and rehabilitative interventions, profoundly impacting their quality of life (
1). Globally, an estimated 240 million individuals, or 15% of the population, live with disabilities ranging from mild to severe (
2). The increased demand for healthcare services and support, including medication and various therapies, places significant burdens on families (
3). In this context, families undergo transformative changes when raising a child with disabilities, affecting their private and social spheres (
4). Research has shown that these challenges, including emotional turmoil, financial strain, and disruptions in parental relationships, collectively influence the overall quality of life for these families (
5,
6).
Importantly, family functioning takes on a unique dynamic when raising a child with developmental disabilities, introducing distinct considerations and responsibilities (
7). Active family engagement in rehabilitation programs is crucial for enhancing the child's skills and fostering realistic perceptions of their capabilities (
8). The evolving health landscape has shifted towards a psychosocial approach, particularly evident in the family-oriented model of children's rehabilitation (
9). This approach acknowledges the critical role of families in health services and rehabilitation, empowering them as key participants in recognizing their child's abilities, needs, and priorities (
10).
The International Classification of Functioning, Disability, and Health (ICF) emphasizes a holistic approach to evaluating rehabilitation services, underscoring the critical role of families in this process (
11). Consequently, family-centered evaluation extends beyond the child's physical, cognitive, and social aspects, incorporating cultural and economic dimensions (
12). While qualitative methods, such as interviews, provide valuable insights, they often lack the structured framework required for effectively assessing family participation in rehabilitation, highlighting the necessity for standardized tools to evaluate parental performance (
13).
An expanding body of literature emphasizes the vital role of family functioning in rehabilitation of children with disabilities. For example, a recent systematic review demonstrated that family-centered approaches not only improve child outcomes but also enhance parental well-being and family cohesion (
14). Active family engagement in rehabilitation programs has been shown to foster better developmental trajectories for children and support families in managing the complexities of care (
15). However, existing assessment tools often lack specificity for addressing the unique dynamics encountered in rehabilitation contexts. Many general instruments fail to capture the subtleties of family interactions and support systems, revealing a gap in tools tailored to rehabilitation-specific needs (
16,
17). This gap underscores the necessity for culturally sensitive and context-specific tools capable of accurately evaluating family functioning within rehabilitation, particularly in diverse populations facing distinct challenges.
Previous studies examining parents of children with disabilities have frequently overlooked tools specifically designed to assess family participation and performance in rehabilitation contexts (
18). Commonly used instruments, such as the "Impact of Family Scale" (IOFS), the "Family Environment Scale" (FES), and the "life participation of parent" (LPP), lack the precision needed for application in rehabilitation settings (
19). In contrast, the "Family Functioning in Rehabilitation Questionnaire" (FFQR), developed by Abaoglu and Aki in Turkey, represents a significant advancement in assessing family performance in rehabilitation (
20). This study uniquely contributes to the field by culturally adapting and validating the FFQR for Persian-speaking populations, addressing a critical gap in the availability of family functioning tools tailored to specific cultural contexts. The FFQR provides a reliable and valid measure of dimensions such as "awareness," "attitude and behavior," "social participation," and "engagement in rehabilitation." Its implementation holds the potential to significantly improve rehabilitation practices in Iran by offering a culturally relevant and robust means of evaluating family participation in the rehabilitation process.
Given the indispensable role of family participation in rehabilitation, as well as the necessity for accurate targeting and early treatment planning, this study aimed to evaluate the validity and reliability of the FFQR among Iranian parents of children with disabilities. The overarching goal was to develop a standardized, reliable, and valid tool in the Persian language to assess family performance within the rehabilitation context. This research is particularly significant as it provides a culturally adapted and standardized tool for evaluating family functioning. By doing so, it enhances rehabilitation practices and contributes to improving the quality of life for families navigating the unique challenges of raising children with disabilities.