Designing the Coronary Artery Disease Registry with Data Management Processes Approach: A Comparative Systematic Review in Selected Registries

Ali Garavand; Hassan Emami; Reza Rabiei; Mehdi Pishgahi; Mojtaba Vahidi-Asl

International Cardiovascular Research Journal

The Official Annually Journal of Cardiovascular Research Center, Shiraz University of Medical Sciences

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Designing the Coronary Artery Disease Registry with Data Management Processes Approach: A Comparative Systematic Review in Selected Registries

Author(s):

Ali Garavand

¹,

Hassan Emami

¹,

Reza Rabiei

^1,*,

Mehdi Pishgahi

²,

Mojtaba Vahidi-Asl

³

1Department of Health Information Technology and Management, School of Allied Medical Sciences, Shahid Beheshti University of Medical Sciences, Tehran, IR Iran

2Department of Cardiology, Faculty of Medicine, Shohada Tajrish Hospital, Shahid Beheshti University of Medical Sciences, Tehran, IR Iran

3Department of Computer Science and Engineering, Shahid Beheshti University G.C., Tehran, IR Iran

International Cardiovascular Research Journal:Vol. 14, issue 1; e100833

Published online:Mar 15, 2020

Article type:Review Article

Received:Jan 06, 2020

Accepted:Feb 02, 2020

How to Cite:Garavand A, Emami H, Rabiei R, Pishgahi M, Vahidi-Asl M, Designing the Coronary Artery Disease Registry with Data Management Processes Approach: A Comparative Systematic Review in Selected Registries.Int Cardiovasc Res J.2020;14(1):e100833.

Abstract

Context

The use of registries to Coronary Artery Disease (CAD) data management plays an important role in the improvement of healthcare processes and reduction of outcomes for patients and healthcare providers. The present study aimed to compare the data management processes of CAD registries in the selected countries.

Evidence Acquisition

This review study was conducted comparatively in 2019. After selecting countries based on some criteria, the required data were collected by searching valid databases, more useful search engines, and related websites to CAD registries for the selected countries as well as by sending E-mails containing a data extraction form to the related organizations.

Results

Totally, five registries were chosen in the selected countries as follows: CADOSA (Australia), APPROACH (Canada), START (Italy), CLARIFY (Spain), and GWTG-CAD (US). The results showed that 60% of the selected registries made use of the electronic case report form for data gathering. The main data elements included demographic and general information, risk factors, vital sings, medication, laboratory tests results, examination results, ECG results, invasive measures and interventions, patient’s status on discharge, results of follow-ups, and post-discharge outcomes.

Conclusion

Developing CAD registries based on the data management principles provides the context to conduct cohort studies with very low costs. With regard to the study results, attention should be paid to data management processes, include data gathering, data processing, and information distribution, in development of CAD registries.

Keywords

coronary artery disease

registry

data management

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